Liver Kids Australia was founded in 2013 in response to the lack of general awareness, support and funding around childhood liver disease in Australia.
Unlike many other children's health issues, liver disease has a relatively low profile. Over 100 different liver diseases can affect children with many of these leading to cirrhosis. Approximately 1 in 12,000 children are born each year with a liver disease, the most common being Biliary Atresia, an aggressive disease responsible for 60% of all paediatric liver transplants.
Liver Kids aims to raise the profile of childhood liver disease and increase related funding by:
- Raising community and corporate awareness of the existence and impact of childhood liver disease.
- Creating a forum and support network for families to share information and tips for managing their child’s condition.
- Providing guides and resources for those wishing to undertake fundraising activities.
- Developing education programs targeting the recognition of childhood liver conditions for relevant health practitioners, including obstetricians, midwives, neonatal specialists and nurses, child health workers and general practitioners.
Liver Kids also aims to contribute to the work of a Liver Transplant Unit with funding to advance research, boost resources for patient care and provide the most up-to-date equipment for the operating theatre.
As an incorporated association, Liver Kids welcomes membership from all families of children with liver disease and children who have received a liver transplant. Those who work in the area and interested community members are also encouraged to join and contribute to raising the profile of childhood liver disease in Australia. Membership is free.