Asha Haylyn Bramham Memorial Fund

Total raised to date: $6,739.73

Support Rob & Heather Bramham

In memory of their daughter, Asha Haylyn, Rob and Heather Bramham are committed to raising awareness of childhood liver disease and Liver Kids Australia. They regularly undertake fundraising drives and participate in marathons and runs to help Liver Kids raise the funds to develop much needed educational resources for both parents and healthcare practitioners.

Show your support for the Bramhams here

The Story of Asha Haylyn Bramham

On the 5th November 2013, one little embryo was transferred via IVF to her Mummy. This procedure was a success, and on 16 June 2014, Asha Haylyn was born.

Her father Rob says, “We knew we had a special little girl on board and we wanted a special name to suit her. We chose Asha Haylyn. Asha means “wish, hope and life” and Haylyn means “unique”. It suited her to a tee. We just didn’t know exactly how unique she was at that time.”

Asha was born prematurely so spent her first four weeks of life in the Special Care Nursery of one of the major birthing hospitals in Australia. During this time, her stools were consistantly pale. One month to the day of her birth, Heather and Rob took Asha home, thinking this was normal. Especially considering no healthcare workers had mentioned during the previous month that it could indicate a problem. Asha also had a partial swap of her stomach and liver. Much later, the Bramhams would find out that both of these are contributing factors of the liver disease known as Biliary Atresia.

Despite these indicators, Asha was not diagnosed with Biliary Atresia until she was 95 days of age. For optimal outcomes, a Kasai procedure needs to take place in the first 14-60 days of life to divert the flow of bile, often followed later by a liver transplant. Asha’s liver issues were identified late and the Kasai procedure was performed at 100 days old. In that time, she already had fibrosis of the liver.

While Asha's Kasai procedure was successful, she picked up hospital infections which put her on life support. Liver patients are susceptible to infections due to the role the liver plays with the immune system. Three weeks into life support and six weeks after she arrived at the hospital, her parents made the heartbreaking decision to intervene and cease further medical treatment. 

For the first time in three weeks, Rob and Heather were able to cuddle her briefly, prior to removing her life support. She passed away peacefully in their arms. Their little girl was too unique - even for the doctors.

As her parents, they knew nothing about Biliary Atresia until it was too late. Now, they know too much. On 5 November 2014, a year to the day after she was placed in her mothers womb, Asha grew her angel wings. She was just 20 weeks old.

Asha’s father Rob has asked, “Please everybody share this story. We want people to be aware of the symptoms for Biliary Atresia. We want other parents to look out for this hideous disease. It is an awful feeling to lose your own baby. I don’t want others to endure this heartache. I will never get to cuddle my little girl. I don’t want another parent to be robbed of that privilege."

In memory of their daughter, Heather and Rob are committed to raising awareness of childhood liver diseases, especially Biliary Atresia and have chosen Liver Kids Australia as their charity.