Useful Information

Organ Donation and Transplant Rates in Australia

Organ donation and transplant rates in Australia have been increasing in recent years. Statistics and fact sheets can be found on the DonateLife website at the link below:

DonateLife Fact Sheets

Australian Transplant Waiting List

The National Organ Matching Service release statistics every month which show the active number of Australians waiting for an organ transplant. At 31 March 2017 the numbers were as follows:

  0-14yrs 15-29yrs 30-44yrs 45-59yrs 60-69yrs 70-79yrs Total
Heart 3 8 10 34 21 0 76
Intestine 3 2 1 1 1 0 8
Kidney 13 71 239 375 240 42 980
Liver 14 11 13 56 41 1 136
Lung 1 11 16 47 45 2 122
Pancreas 0 1 34 15 3 0 53
Pancreas Islets 0 0 3 3 3 0 9
Total Patients 34 104 316 531 354 45 1,384










The Australian Paediatric Liver Transplant Experience

In July 2016, Liver Kids Australia held a Conference and Family Day which included presentations from leading Australian experts. You can see some of the presentations by clicking on the links below:

Libby Mutimer: My Journey: Childhood to Adulthood with Liver Disease and Transplant

Libby Mutimer received a liver transplant in 1988. She was diagnosed with Biliary Atresia when she was 5 weeks old and after undergoing 2 Kasai operations, Libby’s family was told her only chance of survival was a lifesaving liver transplant. At the age of 2 years, Libby was just the 4th child to receive a cut down liver transplant.

Dr Michael Bowden: The Psychological Impacts on Families of Paediatric Liver Disease: Research Findings

Dr Michael Bowden is a Consultant Child, Adolescent and Family Psychiatrist with almost 30 years' experience working in Psychiatry. He is a Senior Staff Specialist and Head of Department of Psychological Medicine at the Children's Hospital Westmead. Dr Bowden spoke on the family impact of childhood liver transplants.

Dr Scott Nightingale: Paediatric Liver Disease: The Future

Dr Scott Nightingale is a paediatric gastroenterologist and hepatologist based at John Hunter Children’s Hospital in Newcastle, NSW. Scott’s liver research interests include biliary atresia and he is currently collaborating in a number of international multicentre drug trials for hepatitis C infection and a rare metabolic liver disease known as lysosomal acid lipase.

Dr Angela Mackenzie: Helping Children through Medical Procedures

Dr Angela Mackenzie is a compassionate and dedicated paediatrician with over 25 years experience, and a sought after child pain specialist, hypnotherapist, speaker and author. Her driving force is helping young children learn to cope with medical procedures and the demands of modern healthcare, by educating their parents, caregivers and healthcare providers.

Dr Michael Stormon: Immunosuppression. For Life? Or Not?

Dr Michael Stormon MBBS, FRACP is a Paediatric Hepatologist and Liver Transplant Physician. He is the Senior Staff Specialist in the Department of Gastroenterology at The Children’s Hospital Westmead in Sydney.

Dr Albert Shun: Thirty Years of Australian Paediatric Liver Transplant

Dr Shun is the Head of the Liver and Renal Transplantation Unit at the Children's Hospital at Westmead and recognised internationally as one of the leaders in the field.